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Sunday, November 29, 2009

H.R. 678: Huntington's Disease Parity Act of 2009

Huntington's Disease is a progressive, degenerative, neurological disorder for which there is no definitive treatment nor cure. HD is a terminal process. It has been described as a process which robs it victims of all physical abilities, saving cognitive abilities for last. Essentially, this means as it is a very humiliating process in that the afflicted is very aware of what is happening to their bodies.

There are of course many such disease processes that humans must content with and suffer through. Unique of HD, unfortunately, is that our social structure demands hard written evidence that the disease process is recognized before any assistance can be doled out.

For HD sufferers, H.R. 678: Huntington's Disease Parity Act of 2009 is that document/law.

I have the text of the bill linked; please check it out and urge your representative to support and co-sponsor the measure.

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